Bibliography

Publications

  1. Daga, A., Altemose, K., Twichell, S. et al. Trends in chronic dialysis practices and outcomes in North American children: a 30-year NAPRTCS registry analysis. Pediatr Nephrol (2026). https://doi.org/10.1007/s00467-026- 07331-5 
  2. Hayde N, Blanchette E, Bock M, Blydt-Hansen T. Outcomes of Steroid Based Versus Steroid Minimizing Immunosuppression in Pediatric Kidney Transplant Recipients: A NAPRTCS Study. Pediatr Transplant. 2025;29(8):e70241. doi:10.1111/petr.70241
  3. Twichell S, Hunt EAK, Ciurea R, Somers MJG; NAPRTCS investigators. Rapid Weight Gain After Pediatric Kidney Transplant and Development of Cardiometabolic Risk Factors Among Children Enrolled in the North American Pediatric Renal Trials and Collaborative Studies Cohort. Pediatr Transplant. 2025;29(1):e70005. doi:10.1111/petr.70005
  4. Twichell, S., Ashoor, I., Boynton, S., Dharnidharka, V., Kizilbash, S., Erez, D. L., Smith, J., & NAPRTCS Investigators (2024). COVID-19 disease among children and young adults enrolled in the North American Pediatric Renal Trials and Collaborative Studies registry. Pediatric nephrology (Berlin, Germany), 39(5), 1459– 1468. https://doi.org/10.1007/s00467-023-06241-0
  5. Erez DL, Pizzo H, Rodig N, Richardson T, Somers M; NAPRTCS investigators. Outcomes based on induction regimens in pediatric kidney transplantation: a NAPRTCS and PHIS collaborative study [published correction appears in Pediatr Nephrol. 2023 Jul 3;:]. Pediatr Nephrol. 2023;38(10):3455-3464. doi:10.1007/s00467-023-05955-5
  6. Merrill K, Galbiati S, Mitsnefes M; NAPRTCS Investigators. Left ventricular hypertrophy in pediatric patients on maintenance dialysis: a report of the North American Pediatric Renal Transplant Cooperative Study (NAPRTCS). Pediatr Nephrol. 2023 Jun;38(6):1925-1933. doi: 10.1007/s00467-022-05796-8. Epub 2022 Nov 10. PMID: 36357637.
  7. Yu ED, Galbiati S, Munshi R, Smith JM, Menon S; NAPRTCS Investigators. Practice patterns and outcomes of maintenance dialysis in children < 2 years of age: a report of the North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS). Pediatr Nephrol. 2022;37(5):1117-1124. doi:10.1007/s00467-021-05287-2
  8. Wasik H, Chadha V, Galbiati S, Warady B, Atkinson M. Dialysis Outcomes for Children With Lupus Nephritis Compared to Children With Other Forms of Nephritis: A Retrospective Cohort Study. Am J Kidney Dis. 2022;79(5):626-634. doi:10.1053/j.ajkd.2021.07.013
  9. Barton KT, Halani K, Galbiati S, et al. Late first acute rejection in pediatric kidney transplantation: A North American Pediatric Renal Trials and Collaborative Studies special study. Pediatr Transplant. 2021;25(5):e13953. doi:10.1111/petr.13953
  10. Hooper DK, Misurac J, Blydt-Hansen T, Chua AN. Multicenter data to improve health for pediatric renal transplant recipients in North America: Complementary approaches of NAPRTCS and IROC. Pediatr Transplant. 2021 Feb;25(1):e13891. doi: 10.1111/petr.13891. Epub 2020 Nov 3. PMID: 33142362.

Additional publications can be found here.

Abstracts and Presentations

  1. Charnaya O, Boynton SA, Puliyanda DP, Verghese PS, Singh V, Nelson RD, Dharnidharka VR. Utility of Donor-Derived CellFree DNA in Pediatric Kidney Transplantation: Results from the NAPRTCS Registry Centers. Pediatric Academic Society Meeting 2026 
  2. Kumar R, Willig L, Zaritsky JJ, Warady, BA, Smith J. WBC Cystine Control and ESKD Risk in Pediatric Cystinosis: A NAPRTCS Registry Analysis. Pediatric Academic Society Meeting 2026 
  3. Benz E, Kizilbash SJ, Ranabothu S, Douglas CE, Boynton SA, Grills NK, Dutta S, Richardson T, Smith J, Bock M. Childhood Opportunity Index and Pediatric Kidney Transplantation: A NAPRTCS and PHIS Study. American Society of Nephrology 2025
  4. Blanchette E, Ciurea R, Hayde N, Bock M, Chandran M, Blydt-Hansen T. Pediatric kidney allograft survival under tacrolimusbased immunosuppression with azathioprine, compared with mycophenolate. Pediatric Academic Society Meeting 2025
  5. Boynton SA, Charnaya, O, Puliyanda DP, Verghese PS, Singh V, Nelson RD, Dharnidharka VR. Utility of Donor-Derived CellFree DNA in Pediatric Kidney Transplantation: Initial Results from the NAPRTCS Registry Centers. Congress of the International Pediatric Nephrology Association 2025 
  6. Boynton SA, Kumar R, Willig L, Elenberg E, Zaritsky JJ, Greenbaum LA, Okamura DM, Grimm PC, Smith J, Warady, BA. Ophthalmologic symptoms and practice patterns in children and young adults in the NAPRTCS Cystinosis Registry. Congress of the International Pediatric Nephrology Association 2025 
  7. Charnaya O, Boynton SA, Dharnidharka VR. Utility of Donor-Derived Cell-Free DNA in Pediatric Kidney Transplantation: Initial Results from the NAPRTCS Registry Centers. International Pediatric Transplant Association Congress 2025 
  8. Daga A, Boynton SA, Somers MJG. Dialysis in North American Children: Report of the North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS). Congress of the International Pediatric Nephrology Association 2025 
  9. Daga A, Ciccia EA, Grills NK, McDermott KM, Boynton SA, Dutta S, Richardson T, Somers MJG. Child Opportunity and Chronic Pediatric Dialysis Outcomes. American Society of Nephrology 2025 

  10. Smith J, Boynton SA, Kumar R, Elenberg E, Okamura DM, Grimm PC, Greenbaum LA, Neu AM, Warady, BA. Clinical Features of Cystinosis and Practice Patterns: A Report of the NAPRTCS Cystinosis Registry. Congress of the International Pediatric Nephrology Association 2025 

    Additional abstracts and presentations can be found here